In the world of rare genetic conditions, one that stands out in Sumatra, Indonesia is the Waardenburg syndrome
. Named after the Dutch ophthalmologist Petrus Johannes Waardenburg, this condition affects both males and females across different ethnic backgrounds. In my last blog post
, we will delve into the causes, symptoms, and potential treatments of Waardenburg syndrome and introduce you to a familly in Sumpur touched by this syndrome during my travel in Indonesia.
Meet Dani 9 years old and Ficka 5 years old, happy children living in a village in Sumpur, a Minangkabau culture where people enjoy a simple life.